News on TMD's biopsy from last Thursday:
The biopsy showed nerve cells which means it is not Hirschsprung's Disease. At least at this point surgeon and pathologist are saying that it may be Intestinal Neuronal Dysplasia, which is similar to Hirschsprung's. This is an even more rare condition than Hirschsprung's so I didn't know much about it. The good news is that at least for now TMD won't need surgery. The bad news is that unlike Hirschprungs this can be treated but not cured. Apparently the seriousness of Intestinal Neuronal Dysplasia runs the spectrum from severe to mild.
We are going back to Augusta next week to see his doctors and discuss this so hopefully we will have more information then. The good news is the our little man continues to grow beautifully and seems happy and well (asside from the occassional fussiness that is common to all babies). He is 7 weeks old today and we are loving the little personality he is developing. Hopefully we'll have more pictures up soon.
The biopsy showed nerve cells which means it is not Hirschsprung's Disease. At least at this point surgeon and pathologist are saying that it may be Intestinal Neuronal Dysplasia, which is similar to Hirschsprung's. This is an even more rare condition than Hirschsprung's so I didn't know much about it. The good news is that at least for now TMD won't need surgery. The bad news is that unlike Hirschprungs this can be treated but not cured. Apparently the seriousness of Intestinal Neuronal Dysplasia runs the spectrum from severe to mild.
We are going back to Augusta next week to see his doctors and discuss this so hopefully we will have more information then. The good news is the our little man continues to grow beautifully and seems happy and well (asside from the occassional fussiness that is common to all babies). He is 7 weeks old today and we are loving the little personality he is developing. Hopefully we'll have more pictures up soon.
1 comment:
Thank you for the update. How did you know something was wrong in the first place? I'm glad to hear he is growing well. Give him kisses from the Wright family!
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